Thank you all who sent in ideas. These were great! No trapeze bar above his bed but I will see what I can request. Also loved the idea of simple coloring book, flour balloon, opposites game etc... You all had some great ideas that got me thinking. Em, I will totally hit you up on that basketball stand! I did try to take him a pad of paper and pencil today. He held the pad and pencil but kept looking at the paper like he should be reading something. Then he would say "well, um..." and get distracted by something he wanted to say. So keep those ideas rolling in!
Dad was very distracted today. Every time I tried to talk to him he would say "well, um..." then try to talk. I'm not sure if he was trying to tell me something or was just talking out loud. We are trying to give him less pain medication because it makes him tired and lethargic so today something was bothering him. I couldn't figure it out when finally he said something that made me think it was his catheter. I asked him if the catheter was what was wrong and he shook his head yes. The doctors said that they would remove it upon our request. So hopefully that is gone so that he can start focusing on other things. It bothered him so much he couldn't concentrate on his physical therapy.
When the physical therapists came in they immediately wanted him to get in his wheel chair. He was able to stand up with two girls about my age bracing him. So he is getting stronger but his right side still needs support because the knees wants to buckle. Once they had him sitting up in bed Dad started talking, so the PT's just sat there and listened to him. Every time they asked him to do something he would again say "well, um..." and begin to explain something. At one point I caught "medical women" so I think he was trying to explain something from the morning session of physical therapy.
The PT's got Dad in his chair and once he was there he kept trying to pull at his catheter. We kept moving his hands away and he started to get angry with us. He would ask "why" and we would try to explain, I don't believe he fully understood. So he started mumbling something and I heard him say "hell." So I asked Dad, "Do you want us to go to hell?" And he looked at me and said "yes!" "I can't believe you want us to go to hell, Dad," I said mockingly. Again he looked at me and very blatantly said "Yes." I told him that was great and he could be angry with us but that he was just going to have to deal because we were trying to help him.
The PT then showed Mom and I some exercises to help Dad get strength in his arms again. We have to work on his right arm and be careful that we don't let it hang because the weight of ones arm can pull the joint out of socket. She also had Dad try to lift his arms above his head. This is when Dad gets confused. His brain still doesn't register what to do when asked to complete a task, like raising his arms above his head. We have to show him first and then he will do it. The PT's want him to get to the point where he can do it without being shown. When they help Dad with physical therapy I realize still how much further his brain has to go. When he is lying on his bed mumbling stuff it seems like he is all there and just needs help speaking. Then the PTs comes in and reminds me that not all of his connections are firing properly. I still am optimistic for Dad but get worried about him being able to function by himself again someday.
By the time I left, Dad was really pissed off at Mom and I. He didn't want to leave his room but I made him wheel me out to the elevators. As we moved through the halls he kept trying to pull at his catheter again. By the time we reached the elevators I felt bad for Mom because she was going to have to deal with the wrath of Dad all the way back down the hall!! Mom said that he was piss and vinegar going back but once the nurses got him back in bed he seemed to calm down. I really hope they can get that stupid catheter out tomorrow because I will be there by myself and don't know if I can handle Dad getting mad at me! It's different to argue with your husband but to argue with your Dad...I'm afraid I'll get in trouble!!
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Hey Jamie! Sorry I haven't called you in the last few days. Things have been crazy, and Kirra has been sick. I have been keeping up with your blog though, and I can't tell you how happy I am that your dad is doing so well. I can't wait to talk to you more about it. Love you!
ReplyDeleteI love that he is getting angry.. lol I think it shows that he is aware of things more then you know!!! Call me so I can meet up with you to get you the b ball stand!!! I will send ya an email on fb with my number.love ya!
ReplyDeleteTo our dear Cousins! Thank you for the wonderful blog, Jamierae. We have been following it daily since Mike called me on day 2. I've been in Tulsa for the past two and half weeks helping Kathleen and Carol care for our mother Joan.Now that I'm home I can post our comments.
ReplyDeleteI am sorry to say that mom is slowly slipping away, a mere 90 pounds and no longer able to stand on her own or eat, she can still be a rascal, like Jim it sounds like, when she doesn't get her daily hershey bar! Hopefully Jim can get rid of his catherer sooner rather than later! As with Jim, it must be similiar - such agonizing moments of grief - mixed with precious moments of joy. It's quite the roller coaster, isn't it.
Mom is totally unaware of Jim's accident. We all agreed that she would be so grieved by the news that she would just give up. We are trying so hard to keep her comfortable and happy during these last days (or weeks, months, who but the good Lord knows!)
There is a new Crowley to tell you about. Carol's daughter Jenny had a beautiful baby girl the first week of November. Her name is Charlotte Rae (or ray, I'm not sure). Charlotte is our mom's first name, (Charlotte Joan) and ray after our father. If these past three weeks have taught us anything, it's that life is so precious. Even during the struggles, there is miraculous healing - and with death, there is a brand new life to ease the pain.
We all love you so much. Each and everyone of you. Jamierae, you cannot begin to imagine how priceless your writings are. Erin, I miss you. Kim, you are especially in our prayers. We know it will be a long haul. However, I know for a fact that the Good Lord is with you every step of the way and He will support and comfort you, and continue to heal our precious Jim. Thank you Mike, as well for the difficult phone calls you had to make. Love and kisses to your kids and their kids. Becky, thank you for the support I'm sure you are giving. Jody too.
Please know we are constantly in prayer for ALL of you.
Cousin Marsha, husband Jim. Also cousins Marian, Carol and Kathleen and all of our offspring.
PS Let me know when I might visit.
Jamie, you are doing so well with this! I remember trying to be nurse to my very strong-willed dad, and it's not easy. just showing up consistently is such a gift you're giving him. It means everything to me that I got to do that for my dad, so hang in there! Pete says he's impressed with the improvements that are happening daily! We'll be in SLC Monday and we'll try to stop by and say hi to your mom.
ReplyDeleteAnnie and Pete