Tuesday, November 11th, one whole week into Dad's recovery and we received some bad news. They took some more CT scans today and found that Dad's brain will "very likely" be permanently damaged. The blood clot has reduced slightly and where it is no longer, there are dark marks left. This signifies permanent brain damage. Now, some of it "may" still be swelling, but most likely it will be permanent. What does this mean? Well, I asked the Doctors the same question, and, of course, they gave me lots of possibilities.
First, this could mean that Dad will never be able to speak or understand language ever again. Second, it could mean that it will take Dad years and tons of physical therapy to regain his speech. Does it mean that he will always need people to take care of him? Possibly. It could also mean that he may come out of this, regain consciousness, but just not be able to speak. Whatever way you want to look at it we are looking long term.
So where do we go from here? Well, we start by putting a permanent feeding tube that is connected to his stomach. He may be able to eat again but at the moment he is not and the Doctors are concerned about sinus infections if we leave the other feeding tube in. So that procedure will happen tomorrow. Now, just to warn everyone he will have to be put under anesthesia and with a brain trauma they do not know how his body will react. Everyone knows that anesthesia is a risk, but we have no other options if we are going to get Dad better.
Next, Dad will be moved to a nursing facility within the next week or two. The Doctors have done everything they can for him and now we just wait until he heals. He needs to be somewhere where he can get help from a nurse 24/7. This doesn't mean he will spend the rest of his life in a nursing home. This also does not mean we are putting him there to die. He just needs medical treatment without the care of Doctors and constant interruptions from hospital life.
Also, please we know that many of you would like to see Dad as soon as possible but my Mom, Erin, and I can not constantly make arrangements to meet people at the hospital to allow them access to the NCCU. So please, please bare with us and we will inform everyone when he is moved to the nursing home and when people may start visiting. Hang in there everyone. We know how much you all love Dad, he is the greatest guy ever. Thanks you for your patients.
I have been trying for the past week to describe the mental state Dad is in and have not felt that I have done a good job. Today the social worker said that Dad is in a "Sleepy Comma," which means that Dad opens his eyes and moves but his brain is in a state of being in a comma. I hope this helps everyone understand Dad's condition. Love you all.
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Such a cute picture of your dad. I agree with the others, you know your dad better than any of the doctors, maybe raising his eyebrows is how he is going to communicate for right now. Look for all the positive things and hang on to them. It is hard but it gets easier and the little things help.
ReplyDeleteIt helps so much to know any information, that way we all know how best to help right now. Thank goodness Jim has such wonderful kids and family taking care of him. That means everything. Pete and I look forward to seeing JIm and your family at the care center.
ReplyDeleteAnn and Pete Pazza
I am sure you have many ups and downs ahead of you. All I can say is hang in there and hang on to the hope. As my mother used to say "don't buy trouble", which I always interpreted to mean don't assume the worst. Nobody knows the future--even the medical professionals. Just know that there are many people thinking about you and your family and praying for all of you.
ReplyDeleteMary L